The world’s leading nonprofit health advocacy organization committed to transforming health through genetics. Our open network connects members of parent and family groups, community organizations, disease-specific advocacy organizations, professional societies, educational institutions, corporations, and government agencies to create novel partnerships. We actively engage in improving access to information for individuals, families and communities, while supporting the translation of research into services.
The NNSGRC provides information and resources in the area of newborn screening and genetics to benefit health professionals, the public health community, consumers, and government officials.
The Newborn Screening Online Training Course is designed to help you better understand and carry out your role with the newborn screening program in your hospital. It is designed to be helpful for anyone a part of the newborn screening process including clerical staff, phlebotomy/laboratory staff, nurses, physicians, midwives, and mailroom staff.
This Spanish MDHHS brochure on the Newborn Screening Program explains the screening process, why it is done, and what happens if it suggests a potential health problem.
This Arabic MDHHS brochure on the Newborn Screening Program explains the screening process, why it is done, and what happens if it suggests a potential health problem.
This MDHHS brochure on the Newborn Screening Program explains the screening process, why it is done, and what happens if it suggests a potential health problem.
The Michigan BioTrust for Health is an initiative to make leftover newborn screening samples more useful and available for medical or public health research. Explore the website for more information targeted towards new parents, health professionals, available consent options, and dried blood spot research.