Diet for Life treatment for individuals with inborn errors of metabolism requires access to multiple types of medical foods, formulas, medications and supplements along with careful diet monitoring and modifications by specialists throughout the lifespan. Michigan and national resources are provided here to help understand and access insurance coverage for these products.
Keyword: Newborn Screening
Michigan Newborn Screening for CCHD (Arabic)
Brochure in Arabic for parents highlighting Michigan’s Newborn Screening program for Critical Congenital Heart Disease.
Michigan Newborn Screening for CCHD (Spanish)
Brochure in Spanish for parents highlighting Michigan’s Newborn Screening program for Critical Congenital Heart Disease.
Michigan Newborn Screening for CCHD (English)
Brochure for parents highlighting Michigan’s Newborn Screening program for Critical Congenital Heart Disease.
After Newborn Screening: Your Baby’s Blood Spots – Michigan BioTrust for Health Consent Brochure (Spanish)
A helpful brochure from the Michigan Department of Health and Human Services of facts about consenting for researchers to use your child’s residual blood spots for future health research (Spanish).
Sickle Cell Transition Care Videos From CDC
Videos from the CDC share personal experiences of individuals with sickle cell disease during their transition from pediatric to adult care.
Link to resource:
https://www.cdc.gov/ncbddd/sicklecell/materials/video.html
https://www.cdc.gov/ncbddd/sicklecell/materials/video.html
Newborn Screening Information for Expectant Parents
Prenatal information on newborn screening for expecting parents!
Newborn Screening Orders
The Newborn Screening Online (NBSO) order placement website provides access for ordering bloodspot screening cards as well as educational print materials and other resources for newborn screening including Michigan BioTrust for Health, hearing screening, and pulse oximetry screening for critical congenital heart disease.
Link to resource:
http://www.michigan.gov/mdhhs/0,5885,7-339-73971_4911_71198---,00.html
http://www.michigan.gov/mdhhs/0,5885,7-339-73971_4911_71198---,00.html
1965-2015: Michigan Newborn Screening: A Public Health Success Story
Reflecting on 50 years of Michigan’s Newborn Screening Program.
Link to resource:
http://michigan.gov/documents/mdch/Newborn_Screening_Book_500007_7.pdf
http://michigan.gov/documents/mdch/Newborn_Screening_Book_500007_7.pdf
September 2015: Newborn Screening Awareness Month
Governor Snyder declares September Newborn Screening Awareness Month.
Link to resource:
http://www.michigan.gov/snyder/0,4668,7-277-57577_59874-363596--,00.html
http://www.michigan.gov/snyder/0,4668,7-277-57577_59874-363596--,00.html