This 5-year strategic plan recommends a framework for a genetics plan for the State of Michigan based on the findings of a statewide needs assessment.
Audience: Public Health
Partnership for Prevention
Harnessing genetics to prevent disease and improve health: A State Policy Guide.
Link to resource:
http://www.prevent.org/
http://www.prevent.org/
Policy, Legal and Ethical Issues in Genetic Research
The National Human Genome Research Institute Ethical Issues provides details relating to policy, genetic testing, personalized medicine and ethics research.
Link to resource:
http://www.genome.gov/PolicyEthics/
http://www.genome.gov/PolicyEthics/
Ethical, Legal and Social Issues (ELSI)
The Human Genome Project devoted 3%-5% of their annual budget towards studying the ethical, legal and social issues surrounding availability of genetic information.
Link to resource:
http://www.ornl.gov/sci/techresources/Human_Genome/elsi/elsi.shtml
http://www.ornl.gov/sci/techresources/Human_Genome/elsi/elsi.shtml
Health Information Privacy
This informational website containing consumer fact sheets and educational materials on the HIPAA privacy rule provides details on medical privacy and national standards to protect the privacy of personal health information.
Link to resource:
http://www.hhs.gov/ocr/privacy/
http://www.hhs.gov/ocr/privacy/
Secretary’s Advisory Committee on Genetics, Health and Society (SACGHS)
This committee advises on the broad range of human health and societal issues raised by the development and use, and potential misuse of genetic technologies.
Link to resource:
http://oba.od.nih.gov/SACGHS/sacghs_home.html
http://oba.od.nih.gov/SACGHS/sacghs_home.html
Genetic Information Nondiscrimination Act (GINA)
This act passed by the United States Senate prevents health insurers and employers from using genetic information to determine eligibility, set premiums, or hire and fire people.
Link to resource:
http://www.genome.gov/10002328
http://www.genome.gov/10002328
Secretary’s Advisory Committee on Heritable Disorders in Newborns and Children (SACHDNC)
This committee works to reduce morbidity and mortality in newborns and children who are at risk for heritable disorders by recommending a Uniform Screening Panel for newborn screening.
Link to resource:
http://www.hrsa.gov/advisorycommittees/mchbadvisory/heritabledisorders/
http://www.hrsa.gov/advisorycommittees/mchbadvisory/heritabledisorders/
National Genome Statute and Legislation Database
This database holds state statutes and bills introduced during the 2007-2010 state legislative sessions focused on topics that address employment nondiscrimination, insurance nondiscrimination and privacy issues.
Link to resource:
http://www.genome.gov/PolicyEthics/LegDatabase/pubsearch.cfm
http://www.genome.gov/PolicyEthics/LegDatabase/pubsearch.cfm
Michigan Paternity Act
This amendment to the Paternity Act regulates the use of DNA identification profiling, genetic information obtained and retention/destruction of genetic testing material.