The National Coordinating Center for the Regional Genetics Networks (NCC) is pleased to develop and share resources related to genetics policy across the U.S. Within the hub, you can find the latest legislation and regulation at the state and federal level, latest information on Medicaid coverage policy, information about specific policy topics and related to policy statements from national organizations, and much more!
Audience: Public Health
MI HEARTSafe School Flyer
MI HEARTSafe School Virtual Workshop: COVID-19 Edition
MI HEARTSafe School Virtual Workshop: COVID-19 Edition
MI HEARTSafe designation given to 111 schools for 2019-2020 school year during COVID-19 epidemic.
Press release from MDHHS. 596 schools receive designation over seven-year history.
MDHHS Guide to Hereditary Cancer Indications for Referral
This interactive Guide to Hereditary Cancer Indications for Referral helps clinicians identify patients who would benefit from risk evaluation, genetic counseling and possible genetic testing for hereditary cancer syndromes.
Guide to Hereditary Cancer Indications for Referral
MI HEARTSafe School Newsletter February 2020
MI HEARTSafe School Newsletter October 2019
SCDY Surveillance Update 2007-2016
This report is an updated version of the report Too Young to Die from 2012 which analyzed sudden cardiac death (SCD) occurrence, specifically among youth from 1-39 years of age. It includes updated death certificate data from 2007-2016, background information on SCD, mortality statistics, case reviews and potential prevention practices.
Michigan Newborn Screening for CCHD (Arabic)
Brochure in Arabic for parents highlighting Michigan’s Newborn Screening program for Critical Congenital Heart Disease.
Michigan Newborn Screening for CCHD (Spanish)
Brochure in Spanish for parents highlighting Michigan’s Newborn Screening program for Critical Congenital Heart Disease.