The National Coordinating Center for the Regional Genetics Networks (NCC) is pleased to develop and share resources related to genetics policy across the U.S. Within the hub, you can find the latest legislation and regulation at the state and federal level, latest information on Medicaid coverage policy, information about specific policy topics and related to policy statements from national organizations, and much more!
One page flyer explaining the MI HEARTSafe School Program
Press release from MDHHS. 596 schools receive designation over seven-year history.
This interactive Guide to Hereditary Cancer Indications for Referral helps clinicians identify patients who would benefit from risk evaluation, genetic counseling and possible genetic testing for hereditary cancer syndromes.
This report is an updated version of the report Too Young to Die from 2012 which analyzed sudden cardiac death (SCD) occurrence, specifically among youth from 1-39 years of age. It includes updated death certificate data from 2007-2016, background information on SCD, mortality statistics, case reviews and potential prevention practices.
Brochure in Arabic for parents highlighting Michigan’s Newborn Screening program for Critical Congenital Heart Disease.
Brochure in Spanish for parents highlighting Michigan’s Newborn Screening program for Critical Congenital Heart Disease.