These documents are available to help State programs develop and expand their genetics programs.
This governmental program is responsible for ensuring the health and well-being of the entire population of women, infants and children by connecting people to services, programs, agencies, maximize resources, and increase quality and effectiveness.
This 5-year strategic plan recommends a framework for a genetics plan for the State of Michigan based on the findings of a statewide needs assessment.
Harnessing genetics to prevent disease and improve health: A State Policy Guide.
The National Human Genome Research Institute Ethical Issues provides details relating to policy, genetic testing, personalized medicine and ethics research.
The Human Genome Project devoted 3%-5% of their annual budget towards studying the ethical, legal and social issues surrounding availability of genetic information.
This informational website containing consumer fact sheets and educational materials on the HIPAA privacy rule provides details on medical privacy and national standards to protect the privacy of personal health information.
This committee advises on the broad range of human health and societal issues raised by the development and use, and potential misuse of genetic technologies.
This act passed by the United States Senate prevents health insurers and employers from using genetic information to determine eligibility, set premiums, or hire and fire people.
This committee works to reduce morbidity and mortality in newborns and children who are at risk for heritable disorders by recommending a Uniform Screening Panel for newborn screening.
