The world’s leading nonprofit health advocacy organization committed to transforming health through genetics. Our open network connects members of parent and family groups, community organizations, disease-specific advocacy organizations, professional societies, educational institutions, corporations, and government agencies to create novel partnerships. We actively engage in improving access to information for individuals, families and communities, while supporting the translation of research into services.
This free weekly electronic newsletter from Georgetown University, provides timely reference to research, findings, policy developments, recently released publications, new programs and initiatives all affecting the maternal and child health community.
NIAAA provides leadership towards the national effort to reduce alcohol-related problems through conducting and supporting research, collaborating with research institutes, and translating and disseminating research findings.
The Center for Public Health and Community Genomics supports programs and activities related to genomics education in various settings from K-12 education through community education.
The National Center for Health Statistics at the CDC provides recent trends for birth, fertility, chronic diseases and specific birth defects.
The mission of the Teratology Society is to promote research and the exchange of ideas and research results that reveal the causes, improve the diagnosis and treatment, and prevent the occurrence of abnormal development and birth defects; to communicate that information to all interested parties that promote the elimination of birth defects through education and training on the causes, mechanisms, treatment, and prevention of birth defects.
NBDPN addresses the issues of birth defects surveillance, research and prevention to identify strategies for reducing birth defects throughout the United States.
The National Center on Birth Defects and Developmental Disabilities is dedicated to protecting people who are especially vulnerable to health risks – babies, children and people with disabilities. Specifically, to identify the causes of birth defects and developmental disabilities; help children reach their full potential and promote health and well-being among all ages with disabilities including blood disorders.