These documents are available to help State programs develop and expand their genetics programs.
http://genes-r-us.uthscsa.edu/resources/genetics/stateplanning.htm
These documents are available to help State programs develop and expand their genetics programs.
This 5-year strategic plan recommends a framework for a genetics plan for the State of Michigan based on the findings of a statewide needs assessment.
Harnessing genetics to prevent disease and improve health: A State Policy Guide.
The Human Genome Project devoted 3%-5% of their annual budget towards studying the ethical, legal and social issues surrounding availability of genetic information.
This informational website containing consumer fact sheets and educational materials on the HIPAA privacy rule provides details on medical privacy and national standards to protect the privacy of personal health information.
This committee advises on the broad range of human health and societal issues raised by the development and use, and potential misuse of genetic technologies.
This act passed by the United States Senate prevents health insurers and employers from using genetic information to determine eligibility, set premiums, or hire and fire people.
This committee works to reduce morbidity and mortality in newborns and children who are at risk for heritable disorders by recommending a Uniform Screening Panel for newborn screening.
This database holds state statutes and bills introduced during the 2007-2010 state legislative sessions focused on topics that address employment nondiscrimination, insurance nondiscrimination and privacy issues.
This amendment to the Paternity Act regulates the use of DNA identification profiling, genetic information obtained and retention/destruction of genetic testing material.