OPHG aims to integrate genomics into public health research, policy and programs to improve interventions designed to prevent and control the country’s leading chronic, infectious, environmental and occupational diseases.
The world’s leading nonprofit health advocacy organization committed to transforming health through genetics. Our open network connects members of parent and family groups, community organizations, disease-specific advocacy organizations, professional societies, educational institutions, corporations, and government agencies to create novel partnerships. We actively engage in improving access to information for individuals, families and communities, while supporting the translation of research into services.
The National Human Genome Research Institute website provides up to date news on issues in genetics, funding opportunities, educational opportunities and careers and trainings for studying the genetic components of complex genetic disease.
This user-friendly guide is to help families who have a child with a genetic condition connect with their doctors and other medical professionals.
YourChild, from the University of Michigan Health System, is a website designed for parents about kids’ development and behavior. This guide links to helpful information, recommended resources, and support groups.
The CSHCS training course provides the basics of being a support parent including the support parent role and best ways to communicate with parents you are supporting. It is for mothers, fathers, grandparents guardians and those wishing to assist in supporting families with children with special needs.
A Michigan guide of genetics clinics and guidelines for genetic referral for providers of early intervention and those serving children with special needs.
