The world’s leading nonprofit health advocacy organization committed to transforming health through genetics. Our open network connects members of parent and family groups, community organizations, disease-specific advocacy organizations, professional societies, educational institutions, corporations, and government agencies to create novel partnerships. We actively engage in improving access to information for individuals, families and communities, while supporting the translation of research into services.
This collection of articles from NCBI discusses genes and the diseases they cause. For each genetic disorder, the underlying mutation is discussed, along with clinical features and links to online resources.
This online directory compiled by the Mountain States Genetics Foundation lists available online support groups for numerous genetic conditions and disabilities alphabetically or by disease/condition.
This “Family” of parents, caregivers and others who work with children with physical and/or mental disabilities and delays use this website to discuss our children’s accomplishments, defeats and provide support.
This site is an attempt to bring together valuable information for parents, educators, medical professionals, etc. who interact with children who have disabilities.
Early On Michigan is available to parents concerned with his or her child’s growth and development and assist families with infants and toddlers, from birth until they turn 36 months or 3 years of age, who may be experiencing delays in their development or if they have a diagnosed disability.
Giving hope, strength and joy to children with life-threatening medical conditions.
