The National Coordinating Center for the Regional Genetics Networks (NCC) is pleased to develop and share resources related to genetics policy across the U.S. Within the hub, you can find the latest legislation and regulation at the state and federal level, latest information on Medicaid coverage policy, information about specific policy topics and related to policy statements from national organizations, and much more!
This pamphlet, translated in Spanish, provides contact information for some of the Michigan resources and programs available to help families who have children with special needs such as family support services, special health care, early intervention, special education, and financial support.
What every Michigan woman of childbearing age needs to know to have a healthy baby.
This interactive Guide to Hereditary Cancer Indications for Referral helps clinicians identify patients who would benefit from risk evaluation, genetic counseling and possible genetic testing for hereditary cancer syndromes.
This report is an updated version of the report Too Young to Die from 2012 which analyzed sudden cardiac death (SCD) occurrence, specifically among youth from 1-39 years of age. It includes updated death certificate data from 2007-2016, background information on SCD, mortality statistics, case reviews and potential prevention practices.
Guidelines provided by the National Heart, Lung, and Blood Institute (NHLBI) for managing sickle cell disease. This report is intended to assist healthcare professionals in their management of the disease among their infant, adolescent, and adult sickle disease patients.
Slides from a webinar presented by Dr. Todd Morgan (University of Michigan) on September 26, 2017.
Slides from webinar presentation by Cristi Radford, MS, CGC, about the ICARE Initiative.
Slides from a webinar presented by Dr. Lisa Rezende (FORCE) on December 15, 2016.
Webinar presented by Dr. Lori Orlando (Duke University) on family health history and MeTree, a “patient-facing family health history-based risk assessment and clinical decision support program.” November 14, 2016.
