Giving hope, strength and joy to children with life-threatening medical conditions.
Link to resource:
https://wish.org/
https://wish.org/
Audience: Patients and Families
Autism Society
This organization exists to improve the lives of all affected by autism by increasing public awareness, advocating for services for individuals across the lifespan and providing the latest information regarding treatment, education, research and advocacy.
Link to resource:
https://autismsociety.org/
https://autismsociety.org/
NIH Alcohol Abuse and Alcoholism
NIAAA provides leadership towards the national effort to reduce alcohol-related problems through conducting and supporting research, collaborating with research institutes, and translating and disseminating research findings.
Link to resource:
https://www.niaaa.nih.gov/
https://www.niaaa.nih.gov/
Centers for Disease Control and Prevention – Healthy Aging
This compilation of resources contains information from health information related to older adults to advanced care and caregiving resources.
Link to resource:
http://www.cdc.gov/aging/
http://www.cdc.gov/aging/
US Surgeon General’s Family Health History Initiative
This initiative focuses on the importance of family history and encourages all American families to learn more about their own histories and provides a Family History Portrait Tool to track and share this information among family members.
Link to resource:
http://www.hhs.gov/familyhistory/
http://www.hhs.gov/familyhistory/
MDHHS Cancer and Family Health History Fact Card
This fact card from MDHHS promotes the sharing of your health history with your healthcare provider and family to help prevent cancer.
MDHHS Family History and Your Health Fact Card
This fact card from MDHHS promotes the sharing of your health history with your healthcare provider and family to help prevent chronic illness.
National Human Genome Research Institute
The National Human Genome Research Institute website provides up to date news on issues in genetics, funding opportunities, educational opportunities and careers and trainings for studying the genetic components of complex genetic disease.
Link to resource:
http://www.genome.gov/
http://www.genome.gov/
Partnering with your Doctor: The Medical Home Approach
This user-friendly guide is to help families who have a child with a genetic condition connect with their doctors and other medical professionals.
YourChild: Development & Behavior Resources
YourChild, from the University of Michigan Health System, is a website designed for parents about kids’ development and behavior. This guide links to helpful information, recommended resources, and support groups.
Link to resource:
https://www.mottchildren.org/your-child
https://www.mottchildren.org/your-child