The Arc

This organization advocates for people with intellectual and developmental disabilities and their families encompassing all ages and all spectrums from autism, Down Syndrome to Fragile X and various other developmental disorders.

Link to resource:

National Center for Birth Defects and Developmental Disabilities (NCBDDD)

The National Center on Birth Defects and Developmental Disabilities is dedicated to protecting people who are especially vulnerable to health risks – babies, children and people with disabilities. Specifically, to identify the causes of birth defects and developmental disabilities; help children reach their full potential and promote health and well-being among all ages with disabilities including blood disorders.