Hay muchos padres que no saben sobre los condiciones de las evaluaciones de recién nacidos. También, no los saben que condiciones en la lista cambian en cada estado. BabysFirstTest (La primera prueba de su bebé) ofrece recursos educativos para ayudar los padres y médicos.
Many parents are unaware of the conditions included in screening, or that it varies from state to state. Baby’s First Test brings together resources to help guide parents and health professionals alike.
This website provides updates on the latest health and scientific research conducted by NIH. The “Health Information Index” has a subject/word guide to diseases and conditions under investigation at NIH. This site also provides access to online catalogs, journals, and grant funding information. The Birth Defects page (https://www.nichd.nih.gov/health/topics/birthdefects) provides links to various related organizations and resources.
The Metabolic Clinic provides lifelong follow-up and treatment for individuals diagnosed with inborn errors of metabolism through newborn screening.
The NNSGRC provides information and resources in the area of newborn screening and genetics to benefit health professionals, the public health community, consumers, and government officials.