The MDHHS Genomics Program initiated a surveillance system to further assess the impact of SCDY and identify action steps for prevention. This website provides links, events, and data on SCDY.
The world’s leading nonprofit health advocacy organization committed to transforming health through genetics. Our open network connects members of parent and family groups, community organizations, disease-specific advocacy organizations, professional societies, educational institutions, corporations, and government agencies to create novel partnerships. We actively engage in improving access to information for individuals, families and communities, while supporting the translation of research into services.