This 2006 report provides recommendations to improve both preconception health and care to improve the health of women and couples, before conception of a first or subsequent pregnancy.
Whether or not a woman or man plans to have a baby one day, preconception health is important. This website provides information for men and women on preconception health, planning pregnancy and reproductive life plans and free materials, and clinical care recommendations for health professionals.
Provides support, information and advice for families of children who have undiagnosed medical conditions.
This program strives to pursue two goals: to provide answers to patients with mysterious conditions that have long eluded diagnosis and to advance medical knowledge about rare and uncommon diseases.
MUMS is a national Parent-to-Parent organization for parents or care providers of a child with any disability, rare disorder, chromosomal abnormality or health condition. MUMS’ mission to provide support to parents in the form of a networking system that matches them with other parents whose children have the same or similar condition.
Providing free personal and private website space to communicate and show support, CaringBridge connects people experiencing a significant health challenge.
This website provides links to additional resources on a variety of topics providing free information and help about specific disorders related to psychology.
ORDR aims to answer questions about rare diseases and activities for patients, families, healthcare providers, researchers, educators, students, and anyone interested in this population.
NORD is dedicated to helping those with rare diseases and committed to the identification, treatment, and cure of these disorders through programs of advocacy, education, research, and service.
This resource provides up-to-date health information about diseases, conditions and wellness issues in language all can understand.
