Currently being revised: This 2015 paper provided the position of the Michigan Cancer Genetics Alliance (MCGA) and the Michigan Cancer Consortium (MCC) on genetic testing and counseling for hereditary cancer predisposition syndromes.
Resources
Diabetes Health Professionals Resources
Resources to aide health professionals with treating prediabetes, diabetes and gestational diabetes such as reference fact sheets, free publications, continuting education opportunities and products to share with patients.
Link to resource:
https://migrc.org/Library/Infoforhealthprofessionals.html
https://migrc.org/Library/Infoforhealthprofessionals.html
Resources for State Genetics Planning
These documents are available to help State programs develop and expand their genetics programs.
Link to resource:
http://genes-r-us.uthscsa.edu/resources/genetics/stateplanning.htm
http://genes-r-us.uthscsa.edu/resources/genetics/stateplanning.htm
Maternal and Child Health Bureau
This governmental program is responsible for ensuring the health and well-being of the entire population of women, infants and children by connecting people to services, programs, agencies, maximize resources, and increase quality and effectiveness.
Link to resource:
http://www.mchb.hrsa.gov/
http://www.mchb.hrsa.gov/
Genetics Through the Life Cycle: Improving Health and Preventing Disease 2003-2008
This 5-year strategic plan recommends a framework for a genetics plan for the State of Michigan based on the findings of a statewide needs assessment.
Partnership for Prevention
Harnessing genetics to prevent disease and improve health: A State Policy Guide.
Link to resource:
http://www.prevent.org/
http://www.prevent.org/
Policy, Legal and Ethical Issues in Genetic Research
The National Human Genome Research Institute Ethical Issues provides details relating to policy, genetic testing, personalized medicine and ethics research.
Link to resource:
http://www.genome.gov/PolicyEthics/
http://www.genome.gov/PolicyEthics/
Ethical, Legal and Social Issues (ELSI)
The Human Genome Project devoted 3%-5% of their annual budget towards studying the ethical, legal and social issues surrounding availability of genetic information.
Link to resource:
http://www.ornl.gov/sci/techresources/Human_Genome/elsi/elsi.shtml
http://www.ornl.gov/sci/techresources/Human_Genome/elsi/elsi.shtml
Health Information Privacy
This informational website containing consumer fact sheets and educational materials on the HIPAA privacy rule provides details on medical privacy and national standards to protect the privacy of personal health information.
Link to resource:
http://www.hhs.gov/ocr/privacy/
http://www.hhs.gov/ocr/privacy/
Secretary’s Advisory Committee on Genetics, Health and Society (SACGHS)
This committee advises on the broad range of human health and societal issues raised by the development and use, and potential misuse of genetic technologies.
Link to resource:
http://oba.od.nih.gov/SACGHS/sacghs_home.html
http://oba.od.nih.gov/SACGHS/sacghs_home.html