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Keyword: information

  • MDHHS Guide to Hereditary Cancer Indications for Referral

    This interactive Guide to Hereditary Cancer Indications for Referral helps clinicians identify patients who would benefit from risk evaluation, genetic counseling and possible genetic testing for hereditary cancer syndromes.

    Link to resource:
    https://migrc.org/cancer-risk/
  • MI HEARTSafe School Newsletter February 2020

    Download Resource
  • MI HEARTSafe School Newsletter October 2019

    Download Resource
  • SCDY Surveillance Update 2007-2016

    This report is an updated version of the report Too Young to Die from 2012 which analyzed sudden cardiac death (SCD) occurrence, specifically among youth from 1-39 years of age. It includes updated death certificate data from 2007-2016, background information on SCD, mortality statistics, case reviews and potential prevention practices.

    Link to resource:
    https://www.michigan.gov/mdhhs/-/media/Project/Websites/mdhhs/Folder4/Folder5/Folder3/Folder105/Folder2/Folder205/Folder1/Folder305/SCDY_Surv_Update_2019.pdf?rev=bd7bbc428c15477b8dd70757bf5fc536&hash=5471924A387FB3B66EB72B92D47DA7D3
  • Inborn Errors of Metabolism Treatment

    Diet for Life treatment for individuals with inborn errors of metabolism requires access to multiple types of medical foods, formulas, medications and supplements along with careful diet monitoring and modifications by specialists throughout the lifespan. Michigan and national resources are provided here to help understand and access insurance coverage for these products.

    Link to resource:
    https://www.michigan.gov/mdhhs/adult-child-serv/childrenfamilies/hereditary/dietforlife
  • NHLBI Sickle Cell Disease Management Guidelines

    Guidelines provided by the National Heart, Lung, and Blood Institute (NHLBI) for managing sickle cell disease.  This report is intended to assist healthcare professionals in their management of the disease among their infant, adolescent, and adult sickle disease patients.

    Link to resource:
    https://www.nhlbi.nih.gov/health-topics/evidence-based-management-sickle-cell-disease
  • Michigan Newborn Screening for CCHD (Arabic)

    Brochure in Arabic for parents highlighting Michigan’s Newborn Screening program for Critical Congenital Heart Disease.

    Link to resource:
    https://www.michigan.gov/documents/mdhhs/1199_CCHD_Parent_Brochure_SP_645789_7.pdf
  • Michigan Newborn Screening for CCHD (Spanish)

    Brochure in Spanish for parents highlighting Michigan’s Newborn Screening program for Critical Congenital Heart Disease.

    Link to resource:
    https://www.michigan.gov/documents/mdhhs/1199_CCHD_Parent_Brochure_SP_645789_7.pdf
  • Michigan Newborn Screening for CCHD (English)

    Brochure for parents highlighting Michigan’s Newborn Screening program for Critical Congenital Heart Disease.

    Link to resource:
    https://www.michigan.gov/documents/mdch/CCHD_Parent_Brochure2_502341_7.pdf
  • Residual Newborn Screening Blood Spot Directive

    An MDHHS form that allows parents or those over age 18 to opt out of blood spot research through the Michigan BioTrust for Health or to request that the Newborn Screening Program destroy the residual blood spots in storage at both MDHHS and the Michigan Neonatal Biobank.

    Link to resource:
    https://www.michigan.gov/mdhhs/-/media/Project/Websites/mdhhs/Folder3/Folder72/Folder2/Folder172/Folder1/Folder272/MDHHS-5683.pdf?rev=1173f852d35144e8ade56cb703eddcf3&hash=5834AE1AC297F3490A72765916542A58

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