If you’re thinking of getting pregnant soon or sometime in the future, it is important to start making healthy choices now, such as taking a multivitamin containing folic acid and visiting your healthcare provider.
Keyword: adult care
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FASD Materials
A list of free brochures, fact sheets and other educational materials from the CDC about FASD available in English and Spanish.
Link to resource:
http://www.cdc.gov/ncbddd/fasd/freematerials.html -
Recommendations to Improve Preconception Health and Health Care
This 2006 report provides recommendations to improve both preconception health and care to improve the health of women and couples, before conception of a first or subsequent pregnancy.
Link to resource:
http://www.cdc.gov/mmwr/preview/mmwrhtml/rr5506a1.htm -
Preconception Health and Health Care
Whether or not a woman or man plans to have a baby one day, preconception health is important. This website provides information for men and women on preconception health, planning pregnancy and reproductive life plans and free materials, and clinical care recommendations for health professionals.
Link to resource:
https://www.cdc.gov/pregnancy/ -
Syndromes without a Name USA
Provides support, information and advice for families of children who have undiagnosed medical conditions.
Link to resource:
http://www.undiagnosed-usa.org/ -
Undiagnosed Diseases Program
This program strives to pursue two goals: to provide answers to patients with mysterious conditions that have long eluded diagnosis and to advance medical knowledge about rare and uncommon diseases.
Link to resource:
http://rarediseases.info.nih.gov/Resources.aspx?PageID=31 -
MUMS Parent to Parent Network
MUMS is a national Parent-to-Parent organization for parents or care providers of a child with any disability, rare disorder, chromosomal abnormality or health condition. MUMS’ mission to provide support to parents in the form of a networking system that matches them with other parents whose children have the same or similar condition.
Link to resource:
http://www.netnet.net/mums/ -
Caring Bridge
Providing free personal and private website space to communicate and show support, CaringBridge connects people experiencing a significant health challenge.
Link to resource:
https://www.caringbridge.org/ -
Psychology Self-Help Resources on the Internet
This website provides links to additional resources on a variety of topics providing free information and help about specific disorders related to psychology.
Link to resource:
http://www.psychwww.com/resource/selfhelp.htm -
Rare Diseases
ORDR aims to answer questions about rare diseases and activities for patients, families, healthcare providers, researchers, educators, students, and anyone interested in this population.
Link to resource:
http://rarediseases.info.nih.gov/