Welcome healthcare providers! Because medical providers are the single most trusted source of health information for Michigan patients and families, this page was designed to help you find current resources on the topics of genetics and genomics that may be used to assist with family history collection, risk assessment and referral, or patient education. The resources listed in the highlighted box were specially selected for Michigan providers with additional resources listed below. For more information on a specific condition or topic of interest, use the site search.

Highlighted Resources

NHLBI Sickle Cell Disease Management Guidelines

Guidelines provided by the National Heart, Lung, and Blood Institute (NHLBI) for managing sickle cell disease.  This report is intended to assist healthcare professionals in their management of the disease among their infant, adolescent, and adult sickle disease patients.

SCDY Surveillance Update 2007-2016

This report is an updated version of the report Too Young to Die from 2012 which analyzed sudden cardiac death (SCD) occurrence, specifically among youth from 1-39 years of age. It includes updated death certificate data from 2007-2016, background information on SCD, mortality statistics, case reviews and potential prevention practices.

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