Are you a patient, parent, or family member looking for information about a genetic condition, risk factor, or birth defect? This webpage is a gateway to help you find Michigan and national resources on a variety of health topics. Follow the links below to view highlighted resources, hot topics of interest, and additional information.
Highlighted Resources
Inborn Errors of Metabolism Treatment
Diet for Life treatment for individuals with inborn errors of metabolism requires access to multiple types of medical foods, formulas, medications and supplements along with careful diet monitoring and modifications by specialists throughout the lifespan. Michigan and national resources are provided here to help understand and access insurance coverage for these products.
Informed Consent for Genetic Testing
The Informed Consent for Genetic Testing booklet was created to provide patient education about genetic testing so the most informed decision can be made about submitting a sample for testing.
Kintalk.org - Empowering Families through Communication & Education
Presentation given by Megan Myers about Kintalk.org “Empowering Families through Communication and Education” – Feb. 9, 2016 via webinar.