Policy Makers

This page highlights genetics and genomics resources of special interest to Michigan health policy makers including public health personnel; health system and health plan administrators; and elected officials and their staff members. As advances in medical science continue to occur, it is ever more difficult to stay abreast of the complex issues and implications for patients and society related to the use of genetic technologies. In addition to the links below, search the Resource Database for information on a specific topic or condition.

Highlighted Resources

Michigan and National Genetic Policy & Law

These State and National laws and policies regarding the collection and use of genetic information have been established to foster appropriate use of genetics technology and protect its citizens.

Michigan Legislation

This website allows the ability to search for laws and bills that are actively being pursued or already incorporated in the Michigan legislature.

Michigan Public Health Code

This Michigan act is to protect and promote public health and provide for the prevention and control of diseases and disabilities.

Genetic Information Nondiscrimination Act (GINA)

This act passed by the United States Senate prevents health insurers and employers from using genetic information to determine elgibility, set premiums, or hire and fire people.

Secretary's Advisory Committee on Heritable Disorders in Newborns and Children (SACHDNC)

This committee works to reduce morbidity and mortality in newborns and children who are at risk for heritable disorders by recommending a Uniform Screening Panel for newborn screening.

Additional Resources

After Newborn Screening: Michigan BioTrust for Health brochure

A helpful brochure from the Michigan Department of Health and Human Services of facts about consenting for researchers to use your residual child's blood spots for future health research.

Birth Defects Prevention Month Highlight

The National Birth Defects Prevention Network (NBDPN) provides resource materials for use during Birth Defects Prevention Month that is celebrated each January. This website provides helpful information about birth defects prevention through pamphlets, fact sheets and online resources for families, providers, policy makers and anyone determined to prevent birth defects.

Birth Defects Statistics

Michigan birth defects statistics arranged by county or local health department.

Familial Hypercholesterolemia Awareness Day

Wednesday September 24, 2014 was declared Familial Hypercholesterolemia Awareness Day in Michigan by Governor Snyder.

Familial Hypercholesterolemia Press Release

Michigan Recognizes Familial Hypercholesterolemia Awareness Day, Encourages Cholesterol Screening

Genetics Through the Life Cycle: Improving Health and Preventing Disease 2003-2008

This 5-year strategic plan recommends a framework for a genetics plan for the State of Michigan based on the findings of a statewide needs assessment.

Informed Consent for Genetic Testing

The Informed Consent for Genetic Testing booklet was created to provide patient education about genetic testing so the most informed decision can be made about submitting a sample for testing.

MDHHS Michigan Developmental Disabilities Council's Five Year Strategic State Plan

This Strategic State Plan provides guidance to the Council regarding how it spends its resources and includes long-term goals to be accomplished within five years.

MDHHS Privacy Notice for Medical Assistance Programs

This notice describes how personal and medical information about you may be used and disclosed and how you can get access to this information.

MDHHS Vital Statistics

Michigan statistics developed from the collection of vital records ranging from events such as births, deaths, marriages and divorces.

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