Patients & Families

Are you a patient, parent or family member looking for information about a genetic condition, risk factor or birth defect? This webpage is a gateway to help you find Michigan and national resources on a variety of health topics. Follow the links below to view highlighted resources, hot topics of interest, and additional information. To learn more about a specific condition or topic, try searching the Resource Database.

Highlighted Resources

BRCAn't Stop Me

BRCAn't Stop Me is the nation's first collegiate organization to focus on prevention and early detection of BRCA-related cancers. The group provides a support system for young men and women who carry the BRCA gene mutation, as well as those who have a family history of cancer.

Informed Consent for Genetic Testing

The Informed Consent for Genetic Testing booklet was created to provide patient education about genetic testing so the most informed decision can be made about submitting a sample for testing.

MDHHS Cancer Genomics Program

Michigan's Cancer Genomics Program provides information about hereditary cancer syndromes, such as BRCA and Lynch Syndrome. Resources for patients, patient advocates, health care providers, and professionals are available.

Pre-participation sports screening for Michigan student athletes

This pre-participation sports physical examination form must be filled out before any Michigan student practices with any athletic team. This form helps determine if a student is physically fit to participate in a variety of sports depending on their family history and personal health issues.

The Birds and the Bees and Diabetes - Teens and Diabetes

This Michigan resource provides information targeted towards teenagers on the importance of keeping glucose levels close to normal to decrease the risk for birth defects.

Kintalk.org - Empowering Families through Communication & Education

Presentation given by Megan Myers about Kintalk.org "Empowering Families through Communication and Education" - Feb. 9, 2016 via webinar

My Family Health Portrait

This web-based tool from the Surgeon General makes it easy to track, save and update family health history.

Additional Resources

1965-2015: Michigan Newborn Screening: A Public Health Success Story

Reflecting on 50 years of Michigan's Newborn Screening Program.

After Newborn Screening Your Baby's Blood Spots - Michigan BioTrust For Health Consent Brochure (Arabic)

A helpful brochure from the Michigan Department of Health and Human Services of facts about consenting for researchers to use your residual child's blood spots for future health research.

After Newborn Screening Your Baby's Blood Spots audio recording

An audio recording of a helpful brochure on the BioTrust from the Michigan Department of Health and Human Services containing facts about parents consenting for researchers to use your residual child's blood spots for future health research.

After Newborn Screening: Michigan BioTrust for Health brochure

A helpful brochure from the Michigan Department of Health and Human Services of facts about consenting for researchers to use your residual child's blood spots for future health research.

Be Well Bookmark

A MDCH bookmark created in English and Arabic focusing on the importance of 400mcg of folic acid a day.

Beaumont Cancer Center of Excellence Cancer Genetics Newsletter

Beamont Hospital Cancer Center of Excellence has a quarterly Cancer Genetics newsletter with up to date information on what's new in the area of cancer genomics.

Birth Defects and Genetic Conditions Resources

This virtual version of the Birth Defects Toolkit provides links to Michigan resources for families and professionals that may be helpful in caring for children with birth defects and a variety of genetic conditions.

Birth Defects Prevention Month Archive

The National Birth Defects Prevention Network (NBDPN) provides resource materials for use during Birth Defects Prevention Month that is celebrated each January. This archive is a collection of past Michigan and National resources from past Birth Defects Prevention months. The focus is to promote preconception health and for all women of childbearing age to have optimal health before conception.

Birth Defects Prevention Month Highlight

The National Birth Defects Prevention Network (NBDPN) provides resource materials for use during Birth Defects Prevention Month that is celebrated each January. This website provides helpful information about birth defects prevention through pamphlets, fact sheets and online resources for families, providers, policy makers and anyone determined to prevent birth defects.

Breast Cancer Genetic Counseling and Testing Patient Education Online Module

Online patient tool with educational sections to help you learn about the genetics of breast cancer and genetic testing. It presents the benefits and risks of getting tested for breast cancer risk in six educational modules developed by expert health care professionals in the field of genetic counseling.

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